In the paper the author delineates the situation of adults with intellectual disabilities living with their family carers who are not in contact with social services for their personal future plans.
Many adults with intellectual disabilities live with their parents and receive the necessary support from them in everyday life. Even today, many grown-ups with intellectual disabilities, who are living with their often very old parents, can hardly be included in the social system. Personal future plans are rarely realized, because the family care arrangements are consolidated in a way that the parents benefit from their children’s presence and are not interested in any changes. A sudden illness or the death of the parents can cause a lot of problems and trouble for their child. The person must deal with different new social situations, which are often very frustrating and overcharging for a person, who lived in a shielded, peaceful family care arrangement. Thus, planning becomes the key to preventing a crisis when family care is no longer achievable because of death or illness. In this case existing knowledge and practice are largely based upon the perspective of professionals.
Study findings show that adults with intellectual disabilities are very aware of the need for alternative housing or support in the future and had clear preferences about their future options. The awareness of the unavoidable death or a possible severe illness of family carers reveal the importance of involving adults with a learning disability in planning for their future, as well as supporting them in the case of a bereavement.
Inhaltsverzeichnis (Table of Contents)
- Introduction
- 1. Background
- .1
- .2
- 2. KOMPASS - a German example for outreach social work.
- .7
- 3. Conclusion
- .10
- 4. References
- .15
Zielsetzung und Themenschwerpunkte (Objectives and Key Themes)
This seminar paper explores the situation of adults with intellectual disabilities living with their families, specifically those who are not engaging with social services for their future planning. It aims to shed light on the challenges faced by these families and highlight the importance of outreach social work in providing support and enabling them to make plans for the future.
- The challenges faced by adults with intellectual disabilities and their families in planning for the future.
- The role of outreach social work in supporting families with adults with intellectual disabilities.
- The need for early planning to avoid crisis situations.
- The importance of involving adults with intellectual disabilities in planning for their future.
- The benefits of outpatient care for adults with intellectual disabilities.
Zusammenfassung der Kapitel (Chapter Summaries)
The Introduction highlights the challenges faced by adults with intellectual disabilities living with their parents, who often lack support from social services. The paper emphasizes the need for proactive planning to prevent crises caused by the potential death or illness of parents.
Chapter 1 delves into the background of the issue, examining the history of changes in housing options for adults with intellectual disabilities and highlighting the often-overlooked reality of many adults with intellectual disabilities continuing to live with their families. Statistics from Germany and the United Kingdom are presented to illustrate the extent of this situation. The chapter further emphasizes the need for outreach social work to provide support and information to families facing these challenges.
Chapter 2 focuses on the KOMPASS program, a German example of outreach social work designed to assist families with adults with intellectual disabilities in making future plans. The chapter explores the program's effectiveness and its potential to address the issue of limited support for these families.
Schlüsselwörter (Keywords)
The core themes and concepts explored in this paper include adults with intellectual disabilities, family care arrangements, outreach social work, future planning, crisis prevention, support services, housing options, deinstitutionalization, and the importance of involving individuals with disabilities in decision-making processes. This work also draws attention to the need for greater awareness and understanding of the challenges faced by families with adults with intellectual disabilities.
- Quote paper
- Katharina Ramm (Author), 2011, Planning for the future. Adults with intellectual disabilities living with their families, Munich, GRIN Verlag, https://www.grin.com/document/913746